Reports

Executive SummaryGovernments at all levels are realigning their health-services and human-services programs to keep pace with changing social and fiscal goals. Government initiatives with respect to the organization, financing, and availability of health services are adding impetus to changes that already are far advanced within the health-care industry.

Highlights The IssueHHS has a considerable investment in surveys and other data systems to support broad analytic and program objectives. These range from monitoring of the population and health system, to supporting biomedical, epidemiological, and health services research, to supporting the management and evaluation of HHS programs.

January 1990 through March 1996 448 Selected Citations Prepared by

The purpose of this study is to estimate and compare costs of care for children with 11 selected chronic conditions, to compare these costs with costs of care for children without any of these conditions, and to identify whether selected demographic variables are associated with cost variation.

U.S. Department of Health and Human Services

By Robert Goerge, John Van Voorhis, Lisa Sanfilippo, and Allen Harden Chapin Hall Center for Children at the University of Chicago April 8, 1996

The focus of this study is on the key events that individual children may experience in the public child welfare service system. This report discusses the importance of this type of research, the issues that can be addressed with the information produced, an initial set of analyses addressing key questions in child welfare and an agenda for future work. [27 PDF pages]

Final Report to the Office of the Assistant Secretary for Planning and Evaluation Grant Number HHS 100-93-0024   Robert Goerge

This paper addresses issues which arise at the juncture of welfare and disability policies. Using preliminary data from a recent survey of current and recent AFDC recipients in California, we find that disabilities and chronic health problems affect the mothers or children in 43% of all households in the AFDC system.

Mark L. Wolraich, E. Michael Foster, Sara C. Willis, and Lynne M. Cushing Vanderbilt University

ForewordForeword  (In PDF format) IntroductionIntroduction  (In PDF format)

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services

This research inventory was assembled in preparation for the National Conference on Managed Care for People with Disabilities.

In an effort to better understand the impact of managed care on disabled populations, staff from the Office of the Assistant Secretary for Planning and Evaluation's Office of Disability, Aging and Long-Term Care Policy and the Office of Health Policy, in collaboration with HCFA, have developed a series of research and evaluation efforts focused on managed care and people with disabilities.

ForewordThe Department of Health and Human Services (HHS) promotes and protects the health and well-being of all Americans and provides world leadership in biomedical and public health sciences.

U.S. Department of Health and Human Services Managed Care and People with Disabilities: Research Project Descriptions Andreas Frank U.S. Department of Health and Human Services February 1996 PDF Version (21 PDF pages)

U.S. Department of Health and Human Services Managed Care for People With Disabilities Research Inventory MEDSTAT Group February 1996 PDF Version: http://aspe.hhs.gov/daltcp/reports/inventry.pdf (73 PDF pages)

The JOBS Evaluation: How Well Are They Faring? AFDC Families with Preschool-Aged Children in Atlanta at the Outset of the JOBS Evaluation. Prepared by Kristin A. Moore, Martha J. Zaslow, Mary Jo Coiro, Suzanne M. Miller of Child Trends, Inc.and Ellen B. Magenheim of Swarthmore College. February 1996

The goals of this project were to describe the quality of care in board and care homes and how it varies across licensure and regulatory systems. Accomplishment of these objectives required a study design that incorporated several activities, including a major collection of new data. This report provides a detailed discussion of methods used in this project. [66 PDF pages]

U.S. Department of Health and Human Services Report on Study Methods: Analysis of the Effect of Regulation on the Quality of Care in Board and Care Homes

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services

In 1992, Lewin-VHI produced the report Policy Synthesis on Assisted Living for the Frail Elderly in order to address: the policy concerns generated by a growing frail elderly population, rapid increases in costs of care, and growing interest in various types of supportive housing for the elderly.

In this article, the authors compare and contrast alternative approaches to administering programs, financed under the Medicaid personal care services (PCS) optional benefit, that make attendant services available to low-income elderly and disabled persons in need of help with daily living tasks.

In Chapter 14 (United States), the long development of long-term care policy is described, giving particular emphasis to the functioning of the main programs introduced in the 1960s, and their progressive modification up to the 1990s. Finally, an outline is given of the main reform debates of the late 1980s and 1990s. [38 PDF pages]

Federal disability programs, which provide services such as cash support, health care coverage, and direct supportive services to eligible people with disabilities, are typically limited to people under the age of 65.

In 1985 there were about 5.5 million functionally disabled elderly persons (65+) in the United States (U.S.) living in the community and an additional 1.3 million in nursing homes. By 2020, these figures are expected to almost double to 10.1 million and 2.5 million respectively. The long-term care (LTC) system in the U.S. is large and complex.

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services Caring for Frail Elderly People: Policies in Evolution Chapter 14: United States Pamela Doty, Ph.D. 1996 PDF Version (38 PDF pages)

U.S. Department of Health and Human Services Encyclopedia of Financial Gerontology: Federal Disability Programs Michele Adler U.S. Department of Health and Human Services 1996 PDF Version (17 PDF pages)

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services National Study of Assisted Living for the Frail Elderly: Literature Review Update Lewin-VHI, Inc. February 1996 PDF Version: http://aspe.hhs.gov/daltcp/reports/litrev.pdf (98 PDF pages)

This is the second in a series of four reports that summarize study findings and methods. This report presents descriptive findings on the characteristics of board and care facilities, operators, staff, and residents. Section 2 briefly describes the study design and sampling and analytic methodology; more detailed discussion is presented in the Technical Report Study Methods.

This report presents the analysis of the effect of regulation and licensure on the quality of care in board and care homes.

Catherine Hawes, Judith Wildfire, Vincent Mor, Victoria Wilcox, Diana Spore, Vince Iannacchione, Linda Lux, Rebecca Green, Angela Greene and Charles D. Phillips Research Triangle Institute and Brown University

U.S. Department of Health and Human Services

Prepared by Lewin-VHI, Inc. This study was prepared for the Department of Health and Human Services , Office of the Assistant Secretary for Planning and Evaluation. November 1, 1995 Executive Summary

U.S. Department of Health and Human Services Subacute Care: Policy Synthesis and Market Area Analysis Proponents of subacute care claim that subacute care is a cost-effective alternative to acute care services, that is, it can be provided in lower cost settings with no diminution of quality.

European Union Restreint ECO 291 CODEC 92 Common Position (EC) No /95 Adopted by the Council on 20 February 1995 With a View to Adopting Directive 94/ /EC of the European Parliament and of the Council on the Protection of Individuals With Regard to the Processing of Personal Data And on the Free Movement of Such Data

U.S. Department of Health and Human Services

Adolescent Time Use, Risky Behavior and Outcomes: An Analysis of National Data Nicholas Zill, Christine Winquist Nord, and Laura Spencer Loomis Westat, Inc. September 11, 1995   For the Office of the Assistant Secretary for Planning and Evaluation U.S. Department of Health and Human Services

After discusion about the possible approaches for conducting the international analysis, the International Collaborative Effort on Age research team concluded that the initial step in analysis should be to establish the 'context' of the research on outcomes of nursing home care.

U.S. Department of Health and Human Services Overview of Long-Term Care in Five Nations: Australia, Canada, the Netherlands, Norway, and the United States RESEARCH FROM THE INTERNATIONAL COLLABORATIVE EFFORT ON AGING

SOURCES OF SUPPORT FOR YOUNG LATINA MOTHERS Joan R. Kahn and Rosalind E. Berkowitz The Urban Institute August 16, 1995

The 1989 National Long Term Care Survey is the first nationally representative survey to collect data on weekly hours of assistance received by ADL and/or IADL disabled elders living in the community by individual caregivers, both formal and informal.

The Office of the Assistant Secretary for Planning and Evaluation sponsored an expert meeting to advise DALTCP on policy issues and available data related to several populations of persons with disabilities: working age adults, children, persons age 65 and older, and special populations (e.g., persons with developmental disabilities, persons with mental illness).

ASPE Research Notes INFORMATION FOR DECISION MAKERS FOCUS ON: Long-Term Care Insurance Issued August 1995 Eldercare: The Impact of Family Caregivers' Employment on Formal and Informal Helper Hours