Intellectual & Developmental Disabilities (ID & DD)

Shifting spending and delivery of long-term services and supports (LTSS) from institutions to the home and community is often referred to as rebalancing. This report and brief describe variation in LTSS rebalancing between 2016 and 2019 by enrollee age, health condition, and demographic factors.

This study explores duties and activities that distinguish the DSP occupation from other direct care workforce occupations to inform the consideration of a DSP SOC code and other workforce data collection efforts. This study also identifies information beyond what is needed to create a DSP SOC code that states need on the DSP workforce to address policy and workforce planning activities.

Attention-deficit/hyperactivity disorder (ADHD) diagnosis and treatment among adults in the United States have increased over the past few decades. However, there are sex, racial, and ethnic disparities in diagnosis and treatment, and underdiagnosis persists.

The existence of multiple operational definitions for intellectual and developmental disabilities (ID/DD) in analyzing administrative claims data for health services and public health research limits translation of study findings to inform policies, programs, and practice.

In 2020, Congress designated the new 988 dialing code to be operated through the existing National Suicide Prevention Lifeline. The 988 Suicide and Crisis Lifeline was established to improve access to immediate support to meet the behavioral health crisis needs in the United States.

State Medicaid programs have the option to cover supported employment services, but use of these services by the Medicaid population has not been widely studied.

This report describes insights gained from key informant interviews and an ASPE-hosted listening session on short-term opportunities for improving patient-centered outcomes research (PCOR) data infrastructure that addresses the needs of individuals with intellectual and developmental disabilities (ID/DD). Related Products:

This brief reviews the role of health and human service providers in preventing Fetal Alcohol Spectrum Disorder.Related Products:

This brief synthesizes effective state and local level strategies for prevention, identification and intervention of Fetal Alcohol Spectrum Disorder.Related Products:

This report describes the current state of Patient-Centered Outcomes Research (PCOR) data infrastructure resources related to Intellectual and Developmental Disabilities (ID/DD), highlights data issues in the ID/DD research landscape that require more research, and identifies opportunities to enhance data infrastructure to improve PCOR for ID/DD. Related Products: