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Improving Data Infrastructure for Patient-Centered Outcomes Research for People with Intellectual and Developmental Disabilities

Publication Date
Authors
Rina Dhopeshwarkar, Christina Rotondo, Frances Jiménez, Sofia Ryan, Madjid Karimi, Emma Plourde, and Prashila Dullabh

This report describes insights gained from key informant interviews and an ASPE-hosted listening session on short-term opportunities for improving patient-centered outcomes research (PCOR) data infrastructure that addresses the needs of individuals with intellectual and developmental disabilities (ID/DD).

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Files
Improving Data Infrastructure for PCOR for People with ID/DD (pdf, 494.55 KB)
Topics
Disability | Intellectual & Developmental Disabilities (ID & DD) | Data & Information Infrastructure
Product Type
Report
Populations
Children with Disabilities