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Data

ASPE uses and produces data as key components of its work. ASPE studies and assesses data and how it is captured, managed, analyzed and protected, including the interplay of the sources, systems, standards for data that support policy, practice and research. 

ASPE also co-chairs the HHS Data Council, which is the principal internal advisory body to the Secretary on health and human services data policy. The Council coordinates data policy activities in HHS, including the development and implementation of an HHS data strategy, and conducts research to improve long-term collection and use of HHS data. 

ASPE’s work involves many types of data produced by HHS and other governmental programs and other partners. For example: 

  • Through its Foundations for Evidence-Based Policies Act of 2018 (“Evidence Act”) and Data Council responsibilities, ASPE leads HHS efforts to improve the quality and accessibility of its data assets.
  • Through its investments under the aegis of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), ASPE supports interoperability through such products as linked datasets involving mortality data, HL7 implementation guides in support of FHIR for research use of electronic health records, claims and other data, and natural language processing approaches.
  • Through the use of ASPE-developed supplemental data tables, ASPE has developed issue brief series examining options before and after the passage of the American Rescue Plan Act of 2021 (ARP).
  • Through its issue briefs such as this brief on Medicare Telehealth utilization trends, ASPE provides unique and timely data and analyses on important policy issues.
  • Pursuant to the Social Security Act, ASPE annually calculates and publishes the Federal Medical Assistance Percentage (FMAP), enhanced Federal Medicaid Assistance Percentage (e-FMAP), and disaster-recovery FMAP for all states, the District of Columbia, and territories. The FMAP is used to determine federal funding for Medicaid/CHIP, Temporary Assistance for Needy Families (TANF) Contingency Funds, and other public programs. The FY 2022 FMAP notice was published in the Federal Register on November 30, 2020.

Reports

Displaying 621 - 630 of 644. 10 per page. Page 63.

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Federal Programs for Persons with Disabilities

U.S. Department of Health and Human Services

Characteristics of Persons with Developmental Disabilities: Evidence from the Survey of Income and Program Participation

In spite of the growth in federal programs affecting the developmentally disabled, there is little comprehensive information about this population. The Survey of Income and Program Participation (SIPP) is one available source of information. SIPP is a nationally representative longitudinal survey of the adult civilian non-institutionalized population in the U.S.

Measuring the Activities of Daily Living: Comparisons Across National Surveys

The activities of daily living (ADLs) are the basic tasks of everyday life. Reported estimates of the size of the elderly population with ADL disabilities differ substantially across national surveys. Differences in which ADL items are being measured and in what constitutes a disability account for much of the variation.

Persons With Mental Retardation and Related Conditions in Mental Retardation Facilities: Selected Findings From the 1987 National Medical Expenditure Survey

This report presents selected statistics gathered on residential facilities designated as mental retardation facilities and their residents as part of the 1987 National Medical Expenditure Survey Institutional Population Component (NMES/IPC).

Design for Survey of Persons with Mental Retardation and Developmental Disabilities: Summary of Recommendations for Survey Questions and Screening Criteria

This document contains brief summaries of recommendations for survey items to be included in the Survey of Persons with Mental Retardation and Developmental Disabilities. The domains covered by these recommendations are based on the core set identified in consultation with the Technical Advisory Group and HHS. [49 PDF pages]

The Activities of Daily Living, National Surveys and Long-Term Care Cost Estimates: Two Current Initiatives

This paper was presented at the 42nd Annual Meeting of the Gerontological Society of America, November 17-21, 1989. It focuses on several problems associated with making estimates using activities of daily living and highlights some of the methodological work carried out or sponsored by HHS to overcome these problems. [14 PDF pages]

Measuring the Activities of Daily Living Among the Elderly: A Guide to National Surveys

The activities of daily living (ADLs) are the basic task of everyday life: eating, bathing, dressing, toileting, and transferring. Although persons of all ages may have problems performing ADLs, disability prevalence rates are much higher for the elderly — rising steeply with advancing age.

Population Profile of Disability

U.S. Department of Health and Human Services

Evaluation of the 1989 Child Care Supplement in the National Longitudinal Survey of Youth

This report summarizes the results of a special experiment in the collection (from 347 mothers) of detailed current and retrospective child care information carried out in conjunction with the 1989 (11th round) wave of the National Longitudinal Survey of Youth.