Data & Information Infrastructure

Introduction and Background Overview The data collection systems sponsored by HHS are critical to the HHS mission, and they also provide most of the national statistical capacity to monitor the health of the population and the functioning of the health care, public health and human services systems.

U.S. Department of Health and Human Services

U.S. Department of Health and Human Services Congressional Report on the Feasibility of Establishing a Uniform National Database on Elder Abuse March 2010 PDF Version: http://aspe.hhs.gov/daltcp/reports/2010/elderCR.pdf (62 PDF pages)

State newborn screening (NBS) programs for heritable diseases and conditions provide vital health information that enables prevention and early detection of rare genetic conditions. Information management of the screening laboratory test orders and the reporting of laboratory is substantial challenge based on a variety of factors.

Identifying Opportunities To Maximize the Utility of Genomics Research Data Through Electronic Health Information Exchange Meeting Summary Andrew Dorfmann and Jessica Nadler 10/15/2009

  Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples: A Colloquium January 7-8, 2009 Georgetown University, Washington, DC

Policy makers use national surveys to paint a picture of the U.S. population along a variety of dimensions. If major surveys are equally successful in capturing income, then, for the same time period, populations and income types, consistently defined income estimates and poverty rates across surveys will be highly similar — varying somewhat due to sampling error.

U.S. Department of Health and Human Services Health Information Exchange in Post-Acute and Long-Term Care Case Study Findings: Final Report Executive Summary