This summary is intended to restate the major research questions being addressed in the Pennhurst Longitudinal Study and provide executives, decisionmakers, and lay persons, in an extremely abbreviated form some tentative answers based on the analysis of the data collected to date.
Office of Behavioral Health, Disability, and Aging Policy (BHDAP)
The Office of Behavioral Health, Disability, and Aging Policy (BHDAP) focuses on policies and programs that support the independence, productivity, health and well-being, and long-term care needs of people with disabilities, older adults, and people with mental and substance use disorders.
Note: BHDAP was previously known as the Office of Disability, Aging, and Long-Term Care Policy (DALTCP). Only our office name has changed, not our mission, portfolio, or policy focus.
The Division of Behavioral Health Policy is responsible for the analysis, coordination, research and evaluation of policies related to mental and substance use disorders, also referred to as behavioral health. The division is the focal point for policy development and analysis related to the financing, access/delivery, organization, and quality of services for people with mental and substance use disorders, including those supported or financed by Medicaid, Medicare, and the Substance Abuse and Mental Health Services Administration (SAMHSA).
The Division of Long-Term Services and Supports is responsible for the analysis, coordination, and research and evaluation of policies related to institutional and community-based long-term care and supportive services, including formal and informal caregiving. The Division is the focal point for policy development and analysis related to the financing, delivery, organization, and quality of long-term care services and supports, including those supported or financed by private insurers, Medicaid, Medicare, and the Administration for Community Living (ACL).
The Division of Disability and Aging Policy is responsible for policy and data development, coordination, research and evaluation of policies and programs focused on the functioning and well-being of persons with disabilities and older adults. The Division is the focal point for crosscutting disability and aging collaboration within the Department and across other federal agencies. Alzheimer’s disease and related dementias and intellectual and developmental disabilities, including Autism Spectrum Disorder, are notable areas of engagement and expertise.
Helpful Information:
Reports
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Advanced SearchInitial Research Design of the National Long Term Care Demonstration
The primary objective of the research in the National Long-Term Care Channeling Demonstration was to determine the impacts of the demonstration on service utilization, public and private costs, clients and caregivers. The demonstration employed a randomized experimental design with random assignment of eligible participants to either treatment group or control group status.
Community Services and Long-Term Care: Issues of Negligence and Liability
Agencies operating under the National Long-Term Care Channeling Demonstration program had complex assignments to assess the needs of older people requiring long-term care, to determine what services met such needs and to arrange for the delivery of services. Responsibility for a client was spread across several agencies, organizations, and individuals.
A Guide to Memorandum of Understanding Negotiation and Development
This paper describes a practical step-by-step approach to negotiating memoranda of understanding. Although they were written for Channeling agencies, the techniques as described would be useful for any social service agency interested in developing formalized interagency agreements. The document includes model agreements. [26 PDF pages]
Working Papers on Long-Term Care
These Papers describe the current state of knowledge about long-term care in the U.S., and serve as a knowledge base for the difficult analytic tasks that lie ahead. They are based on the work of HHS's Task Force on Long-Term Care up to January 1981 and contain data that have not been available before.
Issues in Developing the Client Assessment Instrument for the National Long Term Care Channeling Demonstration
This preliminary report addresses a number of issues pertaining to the development of a combined research and clinical instrument for assessing the functional status of clients in the National Long-Term Care Channeling Demonstration.