Dementia, including Alzheimer’s disease and related disorders, is a neurocognitive disease affecting an individual’s cognitive function and behavior. Dementia is a leading cause of death and is particularly prevalent at the end of life (EOL) in older adults.
Hospice, Palliative Care
Reports
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Functional Trajectories at the End of Life for Individuals with Dementia Issue Brief
Dementia, including Alzheimer’s disease and related disorders, is a neurocognitive disease affecting an individual’s cognitive function and behavior. Dementia is a leading cause of death and is particularly prevalent at the end of life (EOL) in older adults.
Trends in Nursing Home-Hospice Contracting and Common Ownership between Hospice Agencies and Nursing Homes: Final Report
Between 2005 and 2015, the number of hospice agencies with common ownership to nursing homes nearly quintupled in number and now represents almost 1-in-5 hospice agencies participating in the Medicare program.
Tracking the Impact of Ownership Changes in Hospice Care Provided to Medicare Beneficiaries: Final Report
This study examines hospice ownership in detail by going beyond the general distinction of for-profit or not-for-profit and considers the extent to which regional or national chains have entered the hospice provider market and how the populations they care for and the services they provide might be distinct from other types of hospice agencies.
Report to Congress
Advance Directives and Advance Care Planning: Report to Congress
U.S. Department of Health and Human Services
Office of the Assistant Secretary for Planning and Evaluation
August 2008
PDF Version: http://aspe.hhs.gov/daltcp/reports/2008/ADCongRpt.pdf (302 PDF pages)
Advance Directives and Advance Care Planning for People with Intellectual and Physical Disabilities
U.S. Department of Health and Human Services
October 2007
PDF Version: http://aspe.hhs.gov/daltcp/reports/2007/adacp.pdf (25 PDF pages)
Advance Directives and Advance Care Planning: Legal and Policy Issues
U.S. Department of Health and Human Services
October 2007
PDF Version: http://aspe.hhs.gov/daltcp/reports/2007/adacplpi.pdf (39 PDF pages)
Medicare's Hospice Benefit: Use and Expenditures, 1996 Cohort
This report presents information on Medicare's hospice benefit who is using it, how it is being used, what costs are associated with its use, what costs precede hospice enrollment and how these vary by type of enrollee.
Hospice Benefits and Utilization in the Large Employer Market
U.S. Department of Health and Human Services